We’ve all heard the quote “the beginning of a friendship often begins with me, too”
Nothing is more true than the beginnings of friendships between parents of children who have the same medical diagnosis. It also holds true with parents of children with special needs, even while the conditions are different.
Who else would understand, without any words spoken, the sleepless nights, the research that is required, the fatigue from a day of wrangling a child through testing, the tears that willpower alone holds back, the countless times you explain the new diagnosis to family and friends while your heart is breaking.
Who else would understand why you scrap and fight for awareness so that research funds are raised, why you run 5ks with nervous energy, bake treats into the wee hours for awareness bake sales, wear tshirts with your support group to be seen and heard, especially if your child’s condition is rare.
Who else would understand that while all of that is true, the joy of milestones reached by your little warrior are so very much sweeter. The blessings are richer. Lessons are learned more quickly, friendships are made a little faster and deeper with new families with the same challenges. The happiness of memories made is a bit more poignant.
For my sweet friends beginning their journey, you are not alone. Our child’s condition is not the same as yours, but we have been at the beginning, too. Our prayers and support are with you.
The symbol for Klippel Feil Syndrome is a key. We are sending you some glittery ornament keys to share with your new KFS friends.